SplynterReality: Real life stuff

Showing posts with label Real life stuff. Show all posts

Friday, April 12, 2013

Drake`s new schedule

Drake turned 2 this past January, and has entered the terrible 2 stage. He has become a lovable nightmare. He screams nonstop, throws tantrums, throws anything really, and is just a general brat. Along with this, he still isn`t talking, and appears to be ignoring everything I say.

He started Physical Therapy 2 weeks ago and we are waiting to being Occupational and Speech therapy as well. His Physical Therapists call him the 8`oclock screamer. Drake screams non-stop from the moment they touch him till they let him go. I have to sit in a viewing room in order to get him to do anything because if I`m in the room he won`t work at all. Either way he screams through it. I told the girls to get earplugs, they won`t offend me. The last thing I need is 2 people losing their hearing over Drake lol.
I do like this therapy better than the other one he went to down by Healthpark. This one is in the All Children`s Outpatient and they do just about everything there too. We are also looking into something called Early Steps which I guess is a government program that would send someone to our house to help me work with him. When he turns 3 they would be helping me to get him into a daycare that would work with him and any issues he has.

Dr. Alea, the pulmonary doctor, wants us to have another sleep study, which we will be doing in May sometime. Just to assess any issues that may have arisen in the past year. This won`t be his last either. For anyone who is unfamiliar with what a sleep study is: A sleep study, for a baby is when they monitor the baby when they sleep. It usually begins at 8pm, by 9pm the lights are out. Before lights out the technician puts a bunch of wires and other random things on the child, it is very scary looking and usually disturbs the child, but doesn`t hurt them. When the child falls asleep everything is monitored, from brain waves to heartbeat, pulse, breathing, reflexes, R.E.M sleep, snoring, etc.

We stopped seeing Donaldson for ENT work. In my opinion he is just too rough and more "drug pushy" than the new ENT we are seeing, Dr. Reidy. Donaldson told me the 2 times we saw him that Drake`s adenoids were fine and his tonsils were nothing to worry about. Even Drake`s old pediatrician literally said "I`ve seen bigger" when he saw the tonsils. I`m sorry. There is a reason my kid is snoring. He is 2, something is wrong, he shouldn`t be snoring so hard he wakes up screaming. There is something wrong with that in my opinion.
And I wasn`t wrong!
Reidy spent 5 min looking at Drake and said he needs tonsils and adenoids out. He said the tonsils weren`t "kissing" yet, but to keep in mind that everything relaxes when we go to sleep, so they are most likely being sucked back into the throat at night and causing breathing issues. He also wants to do something with warm water up Drake`s nose during the same procedure that will make something up there shrink.
After failing 2 hearing tests we have realized Drake is starting to go deaf mainly in his left ear. Reidy is going to put tubes in after the hearing test confirms he will be okay under sedation.

It was a lot to take in, after having doctor after doctor tell you he is fine, we are now finding out he isn`t ignoring me, he can`t hear me. What a slap to the face I felt lol.

More updates as time goes on. If any mothers` read this and have questions or need someone to talk to about their child with dwarfism, feel free to reach out. My email is Kihluna@yahoo.com. Don`t feel weird or insecure, I know I`ve wished I had other mothers to talk to about this. The only person I know who went through all this is Tony`s mother, and she keeps telling me I worry too much.

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Monday, January 7, 2013

Miami trip 1/7/13

Today was the long awaited Miami trip. The one we take each year to see Drakes geneticist. I get so anxious when driving that usually josh has to drive for this trip because miami drivers are crazy, this trip I drove the whole way because josh couldn't get the day off of work. After waking up at 5am to bring him to work, tony let me sleep in till about 8:30 since everything was packed last night. We left the house at 9:30 and made good time taking an alternate route to avoid the tolls.
Around 10:30 we stopped for a potty break, changed the baby and let Aries pee. We had to bring him because he just had the snip snip surgery and can't hold his pee very long so I didn't want him sitting in his crate for 6-7 hours. Ate some of the tuna salad I made and got back on the road after fighting with the air conditioning a bit.
Arrived on time and set aries up in the car with food and water and puppy pads and went in. Drake was wet so I went to change his diaper. He waited till I had his butt in the air to start peeing. He laughed at me at first, then got himself in the face. I couldn't finish changing him because he was laying in pee, I would swear it was half a pint of water! So I let him wander around the bathroom naked minus the shoes until tony brought me an outfit and I had the pee wiped dry everywhere.
Tony was already in the room by the time we got out. They did drakes weight and head circumference, then put us in the room. The visit went well, though it was the drs last time at miami u, next year we'll be seeing her at miami childrens. She gave us our list of things to finish before next year. All 3 therapys, tonsils and appenoids removed, head monitored, dentistry,hearing test and re-evaluation by all the specialists.
Then we drove the 57 miles to visit tonys dad, had dinner and watched aries try to take on their german shepherd. At this point it was 7pm I had been up and driving since 5am so obviously I was tired. After a long and grueling 2.5hr drive we arrived home. The whole trip took 1 tank of gas and was about 350miles.
Id say we did pretty well. Spent 25 bucks the whole day

Tuesday, August 21, 2012

The update to end all updates

New House:

Well if you remember we were in a bind with out old house, the landlord took off out of state after a woman and pretty much dumped his 6 houses on his ex wife and his brother. Our house belonged to the brother, he didnt want renters. So after much drama we found this duplex in lehigh. Even though it is a "duplex" and we have people on the other sides of the walls, we cant even hear them! and they have a parade of kids in and out of there every day..I think they babysit or something idk. But the duplex is actually bigger than the house lol, and better maintained, but not by much. We have issues with the well and septic that the property manager doesnt seem to concerned about. We have to choose between leaving a septic alarm on all the time or being able to flush the toilets. Dont really care, one day the septic will explode and we`ll be like "told you so"

The house has a 1.5 car garage and a master bed/bath so no more sharing bathrooms (yay!!) couple of downfalls though. we have a dish washer, but only 6 cabinets [-( not talking

...and a tiny half foot deep pantry...and I`m getting into a :stockpiling: habit so I`m getting creative with storing things.

Garden:

I had to leave behind my onions and garlic because the totes snapped when we moved them, but we got the majority of the garden over here. I had to restart my loofahs and cucumbers because we live partially in the woods now so Ive had issues with bugs... ~X( at wits' end

I tried to keep it organic but i broke down and bought some pesticide. (though we werent paying attention till I read the full bottle it ended up being "organic" pesticide. I have also added some foxglove, lavender, dill, strawberry and some other native florida plants to try and spruce up the area. I have some pumpkin vines fighting with squash beetles too out there. Both of my tomatoes died so I have 2 more, but pretty much everything is suffering from the florida heat and flash flood rainstorms. I can`t wait for fall. Planted some watermelon, sunflower and cucumber today as well, hung them on the chainlink fence so I can train the vines to grow on it.

The only other thing that bugs us is that the whole back yard has a 6 foot chainlink around it with a gate by each garage. It`s not split so we eitehr have to block the dogs from getting back there or keep checking the neighbors gate to make sure it is shut.

OH and there is this horribly annoying vine that keeps taking over the fence. I`m out there every week trying to cut it back. We are trying to machete a path on the wooded side so i can spray vine killer along the ground.

Drake:

Drake is walking! We have had nothing but sucess after the surgery, he is eating but refuses to learn with a fork or spoon. He doesnt even want plates and tends to throw them. We have weaned him from bottles and he is on straight sippy cups now. We have one with a straw as well but none of us can get it to work. We got kicked out of therapy because we havent been able to attend, just didnt have the gas since we live farther away from the boys jobs. But they sent us this huge packet of stuff to work on with him, and ortho said the 50% curve in his spine has dropped to 25%. He doesnt need braces or anything either so we can finally put shoes on the kid lol.

Animals:

Okay about 3 weeks ago diamond died. The new house has wood and tile and she slipped a few times and then just couldnt get up anymore..We had to take her out to the ranch for dad to put down. Its been hell here since then. The others are fighting for top dog and since my back is injured I havent been able to stop them really.

We also ended up taking in a new dog, Jordan. The boys kept sending me ads from craigslist for a 4th dog after diamond was gone trying to cheer me up. I halfheartedly texted or called each one, and jordan already had a new home. Few days after that jordans owner informed me that the shelter had him and asked if i still wanted him..I was shocked at what I got. Our "new dog" is half starved and was dragged under a car by his throat and then amaturely cauterized. He is 3 but has the teeth of a six year old, and is in very bad shape. He is such a sweet dog, he puts up with all of the treatments and goes to the vet for wraps and penecillin every three days.

He is Joshs new best friend. Josh finally has a dog that sleeps with him at night lol.

Also...we got a finch. Drake wanted her. Tweety Bird

Me:

well I havent been in the best health really. 3.5 weeks ago I was walking sassy and she pulled my shoulder nearly out. The next morning my back was on fire, it got worse and after 2 weeks i went to the er. Turns out she over-extended my back muscles. Its like round ligament pain from pregnancy, only at the base of my spine. Takes 6+ weeks to heal fully, but at least today I can bend over without falling.

I`ve started to make most of our household stuff as well, I have a horrible rash in my armpits from the natural deodorant lol. Turns out when you quit using commercial products your body goes through withdrawls lol. It was horrible for 2 days but now im peeling and even though I havent put any on in 2 days there is no B.O at all! Turns out commercial deodorant has aluminum flakes in it, and a chemical that makes you perspire, so you keep buying it.

Same with the toothpaste. Flouride is actually pretty bad for your teeth, especially bc its put in our drinking water so you get more than enough of it every day. Its added to anything made with water. Its been tough getting the boys to use home made toothpaste because it tastes pretty horrible, but it leaves your teeth dentist clean, and we use a Colgate Complete mouthwash with little or no flouride.

As soon as we run out of something I figure out how to make it homemade. We no longer buy box dinners, but instead I make sauces and use block velveeta and pasta since its usually B1G1free.

Also our foodstamps is going up to like 425 a month so we are storing cans in totes under the couches, and our bed, We also are collecting shelves and small dressers and stacking them in the garage

so far I make creamer, homemade hershey syrup, laundry detergent (liquid, solid and granular) and fabric softener, febreeze, toothpaste, deodorant, and conditoner.

We no longer use those plug ins, bc studies found they can lead to respitory problems. Instead the flea market has a store that sells essential oils and fragrances, I mix some with water and spray the house, we also use an oil burner, going to try my hand at potpourri soon as well.

I`ve started taking a variety of daily suppliments, as the back scare has made me realize I really need to get my stuff together. B12,D3, C, a multi gummy, E, something for my eyes and an estrogen suppliment bc I think thats my big issue is the birth control messing up my hormones.

We have really cut back, No more cable, no home phone. We dont pay for water here, and electric was only 95$ this month dispite people leaving lights on everywhere. We strategically placed the fishtanks so no more nightlights or noise makers (babys room)and theres only 4 windows on the whole house and we have the south side so we get less sun as well lol.